One April morning a year and a half ago, a truck loaded with three pallets of sandstone flags pulled up in front of our house, and I guided the driver and his bobcat across our winter-brown wildflower "unlawn" to where he gently set each pallet down near the petanque court. 

Flagstonedelivered

The flagstone was my Mother's Day present, to build a patio in the courtyard off our bedroom. Richard moved about half of the flags, one by one, through the kitchen garden into the courtyard over the next month (many weigh 200 pounds or more; moving them by hand requires a sturdy cart and a knowledge of rocks and physics). We "drew" the shape of the patio on the ground, and were poised to start…

When a new tumor reappeared in Richard's right brain, necessitating his second brain surgery and the removal of most of his right temporal lobe that August, followed by the discovery that the tumor was a glioblastoma, the worst form of brain cancer. Then came my mother's decline, helping with her hospice care, and her death in February. Immediately following that, Richard's three brain-swelling crises, two brain surgeries in March, and the tumor commandeering his right brain.

Flagsinwinter

The flagstone sat waiting through a summer, fall, winter, spring, and into another summer. Oh, I used some of it for a front walk last July before the North American Rock Garden Society toured our "unlawn" and gardens as part of their annual meeting. But the rest sat untouched.

Until today, when I decided I'd just lay one flag, the extra-big one we'd picked to go right outside the sliding glass door, to begin the patio project. I figured I'd prepare the ground, set that one stone, and be done by lunch. Hah, hah!

Tools

I gathered my tools, including the industrial-strength rake we use to work our "soil," a mix of about 35 percent rounded cobbles, plus gravel, sand and a bit of silt; a flat-bottomed shovel; the screen Richard made for me; and his level and T-square. Then I started raking and picking rocks. I sorted out the cobbles for another project, and then screened the piles of loose material, spreading the pea-gravel on a nearby path, and piling the finer remains as a bed for the flagstone.

Courtyard

When it came to smoothing the bed to slope away from the house, I asked Richard to consult. Then came wrestling the 200-pound, awkward flagstone into place. He's a genius with pivots and levers and using scraps of wood for sliders. Still, it took more than an hour to finesse that rock's journey from leaning against a wall to resting in place. (There it is in the photo below, with the level measuring the drop from the house.)

Leveling

It was two-fifteen when Richard and I straggled back inside, sweaty and starving. But we had the first flagstone laid! We washed up; he took his lunchtime drugs and laid down; I made lunch and let him sleep for 45 minutes before I roused him to eat. 

Fledglingpatio

After our late meal, I was so jazzed that I went out and raked and screened and leveled and laid a flag small enough to manage by myself. (The Chinese pot glazed with sunflowers in the corner is our mini-water garden.) As I finished, a few drops of rain fell, infusing the air with the fragrance of life–like a blessing from the sky.

Here's the best gift from today though: Richard hasn't handled rocks since the tumor took off this spring. His vision is impaired (he essentially sees in two dimensions, not three, a real liability for a scuptor) and his ability to imagine spatial relationships is hindered too. But when I asked for his help with that huge flagstone, it came back to him. Slowly, but once his hands were on the rock, he knew just what to do.

"I've been thinking about that patio," he said over lunch. "But I couldn't see the project all the way through, so I was reluctant to start. You got me going. Thank you."

Sweet!

Richard

I've been a caregiver for the guy in the photo above, the love of my life, sculptor Richard Cabe, since he began seeing bird hallucinations at the end of August, 2008. I didn't think of myself as a caregiver then. He spent a week in the hospital that September after the birds came and went, and it was a shock to see my strong and rudely healthy husband sitting cross-legged on the bed in a hospital gown, day after day. We both figured whatever was wrong in his brain was an aberration, and he'd recover quickly.

I still didn't think of myself as a caregiver even when I learned how to administer his thrice-daily infusions of IV antiviral drugs, or after his brain surgery that October to remove the first brain tumor, or after his subsequent diagnosis with brain cancer. Not even when we moved to a suburb of Denver for six weeks that winter for his radiation. Or during the six months of his intensive chemotherapy late that winter and spring. Not during brain surgery number two, when his neurosurgery team removed much of his right temporal lobe. Not even when the pathology report came back with the worst news, "grade IV, glioblastoma."

Somehow I avoided thinking of myself as a caregiver through two succeeding brain surgeries, and the trips back and forth to the hospital for various crises…

It really only hit me that I had become a caregiver when brain swelling degraded his vision so he could no longer drive, or bake his widely admired whole wheat sourdough boule (loaves as sculptural as anything he ever created with stone and steel and wood). Or pay the bills, or, on some days, button his shirts. (He can still split firewood though, hence the photo at the beginning of the post!)

Passages

That unanticipated, unrealized slide into caregiving is why renowned literary journalist Gail Sheehy wrote Passages in Caregiving: Turning Chaos into Confidence. The role takes over our lives insidiously, usually with no warning, much less time to think. Not only do we not consciously sign up, we often don't even realize we've become caregivers until it's almost too late to figure out how to not hurt ourselves–or others–in the doing.

If you're female, you'll need this book someday: "Today's average caregiver," Sheehy writes, "is a 48-year-old woman who holds down a paid job (more than half work full-time) and spends twenty hours a week providing for an adult who used to be independent… And this role lasts an average of five years."

Sheehy walks readers through the journey in chapters shaped by walking a labyrinth from the start through the many turns, arriving at the center and finally, back out again. Each chapter includes some of Sheehy's own journey in caring for her husband, the legendary editor Clay Felker, through 17 years with cancer, plus facts and stories from other caregivers, research related to caregiving, and an extensive sidebar detailing resources for caregivers at each step along the way.

Caregiving can be a grueling journey. But as Sheehy writes in this illuminating, informative and inspiring book, if we allow ourselves to be thoughtful and prepared, to ask for help and call on the resources available, caregiving can rise above the pain and terror and panic and exhaustion into an exercise in "practical spirituality," a walk that can transform our lives, families, loves, and selves.

(Read my full review of Passages in Caregiving at Story Circle Book Reviews, the largest review site for books by and for women. Thanks to Denese for sending me the book!)

****

As for my beloved: We're home for another week before traveling to Denver again for his first infusion of Avastin, which we hope will starve his growing tumor by cutting off its vascular network. His energy and some of his brain functions–especially vision–have definitely been impaired by the tumor activity in his right brain.

But we still find grace notes in every day, like the wonderfully sky-blue blizzard of mountain bluebirds that fell on our yard yesterday after the weekend's spring snow.

Twobluebirds

And he is still determined to greet each day with "an attitude of celebration and gratitude." That's inspiring.